Tuesday, September 17, 2013

port mishap

I do not understand why this always happens to me.Finally after being in nonstop pain since Wednesdays chemo I gave in and went to the ER last night. The bone pain and nausea were more than I could bear for another second. It took probably 20 minutes for me to get down the steps from my room and to the car. We got a nice doc that was very willing to help me and ordered me pain meds and nausea meds. The nurse comes in and misses my port. but she thought it was in there so she started pushing the saline. I had my head turned because you aren't even supposed to breath on your post when it is accessed I started feeling pressure and burning in my chest I never felt before so I told her to stop it wasn't in right and was burning badly and giving me a heartburn type feeling. she wiggles it around trying to see if changing the needle position would work. Then poke number 3. Nope She leaves it in comes nurse number two who decides that she will take out first port attempt and try again. First of all I noticed that the kit she was using had white gloves my kit has purple gloves. So I ask her about that and she said oh ours don't have them we use out own sterile gloves, okay well the last nurse had a kit that looked just like mine with purple gloves it is for a power port. She comes in palpates my port with by the way her bare hand after it already had a hole in it from the last port attempt. But I was in too much pain to notice this Steve and Tori were watching it all. Then she proceeds to swab the antiseptic on my chest. Steve freaks out, she was swabbing iodine on my port area with the hole in it and I am allergic to iodine. UGGG . she says its ok because I was allergic to iv iodine. Scrubs it off, proceeds to get her stuff set up, She lays me flat which I tried to tell her NEVER works they access you sitting up at the cancer center. And guess what failed post access number 4. After 20 more minutes in comes nurse number 3. Now we have at this point been here for 3 hours and I have yet to receive a drop of medicine. I told this nurse which was an older lady and the last nurse that the d pushed fluids in me that caused a lot of chest discomfort and the older nurse said yes that would be uncomfortable. and I said what will it do? I mean this port is somehow connected to the arteries of my heart. She said it will absorb its only saline, But after looking at their failed attempts she wouldn't try it at all. So she leaves. Back in comes nurse number two and 3 they had a baby sized iv needle they inserted it into my only good vein. gave m nausea meds and then pain meds. Took ten minutes total to give me the meds. Then the doc comes in and I told him all of what had happened. No response. Well we will go ahead and get you out of here. BTW when I asked what they were giving me by iv , it was exactly the same strength meds I had at home?? Over 4 hours later and we leave in the wheelchair I came in with. He did give me a prescription for a pain patch fentanyl that stays on for 3 days. Which would be a good thing but he gave it to me in the same strength of the 12 hour pills I have here. Which I take round the clock. I asked why not give me something stronger since what I have is not working? He said well then you would sleep all of the time. UGGG SOOOOO????? I was crying which I NEVER do, when talking to docs.this was my last chemo The doc told me that this pain will take a year or so to go away and some pain never will. But this intense chemo pain, after 24 solid weeks of treatment, and after 4 surgeries. And you are worried I might get some sleep??? Oy thank God this was my last chemo and I pray I never need it again. So I get home more exhausted than ever. And now I have to get back up the stairs to bed. Thank goodness Steve is strong. So I am home wearing this patch. With a worse headache from stress. And a big pocket of fluid that the nurse pumped into my now very sore chest and port area. praying it doesn't cause any issues other than the chest pressure. I have had this port accessed close to 100x and they have never missed. Every time I go to the hospital they miss. Why don't they train them? as well as the importance of sterility needed with cancer patients? Tomorrow is 6 month follow up from mastectomies at Magee. Prayers needed to find the strength to get there.

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