Thursday, February 7, 2013

missed ya yesterday!

  I came home from my appointment s yesterday and crashed for over 3 hours, I was falling asleep the whole way home, and only got up long enough to eat and take meds then slept from 6 last night till 8 this morning... Slept through my bedroom furniture being moved and my kids coming home all of it.  I think realizing this was the last procedure before surgery allowed me to let the exhaustion kick in.  I wanted to update you all as I know there are many that care about me and are following my blog...But my body,mind and spirit had enough. Sorry if I had worried you all...
  Yesterday was the appt with the Gyne...had to be up showered and in Pittsburgh by 9am... woke up tired and just not wanting to be "me' ...But got up and went anyways... would like to say, because I was strong enough... but really it was 'cause I had too...lol.
     Anyways the issues at hand were...when I went to My surgical oncologist I complained to her about abdominal pain, bloat, missed periods,heavy clotting when I did get one... I have done enough research on my own over the years because of not getting the answers I needed from docs that I have learned quite a bit... I suspected even though my last pap was normal that I had enough of the symptoms that maybe I had ovarian cancer...
     So, she ran a battery of tests....intravaginal and regular ultrasound, along with a ct with contrast of chest ,abdomen, and pelvis...
    The lady that did my ultrasound was very nice and talked me through the whole thing , there was a screen on the wall that i could actually watch the same things she was seeing on her screen...
    I thought how odd it was to be there, as I had this same test done when pregnant for Savannah in the same room,  same hospital , I was so happy then and so glad she was in there.
    But this time I was praying that nothing at all was in there... She found an endocervical polyp, that my endometrial lining was slightly thickened and a debris filled cyst on my right ovary.
    The thickening was only slight and being that I hadn't had a period in nearly two months that could account for the thickening as well as the cyst. When I asked about the polyp she said they were typically benign but suggested I go for a repeat ultrasound after my next period.
    Well, being that my ob/gyn was the one that missed my breast cancer and hadn't even thought enough of me being his patient for over 10 years to call me and tell me that i had cancer, coupled with the fact that my pap took 5 weeks to come back and I was desperate to find out if it was okay as I had already been diagnosed with the breast cancer...I had called , and called always getting only a machine and left desperate messages, and noone called me back ... Finally I got a return call from a nurse who was not in the least bit compassionate of my plight...I decided they would never touch or see me again.
    So, I contacted Magee told them my situation and the urgency of me being seen as my surgery is so rapidly approaching and chemo would start almost immediately thereafter...They bent over backwards and got me into the gyne I saw yesterday...Dr Simmond
     What a difference of care... first of all since all of my docs are now within the upmc network they had a computer there that pulled up all of my info and results with the touch of a button...So now all of my docs with be privy to ALL of my history... which makes so much sense to me...
    I went there in the hopes that he could remove the polyp in the office and biopsy it before my mastectomy, and could  give me another ultrasound... Well neither could happen... First of all it is not an endo cervical polyp it is a polyp within my endometrium...which means it cannot be seen without surgery... and the ultrasound could not happen because if the cyst had ruptured as I expect it has it would be too soon to show a clear picture.  So, I have to call then when i have my first period immediately after my surgery go back in for another ultrasound...
    I asked him if the polyp was benign then why take it out...and he said it needs to come out to be biopsied to be sure it is benign...and that a cyst could also not be benign...
    So, I want it out and he agrees it needs to come out via d&c... problem is that the cancer treatment has to take precedence...
     So, for now it has to stay...and my worry will continue... I am seriously hoping that I can talk the doc into a hysterectomy after the cancer treatments are done... due to my moms history, my sister just had a hysterectomy as well, and i am now having abnormal growths... I am not having anymore kids...so if it means less to worry about then I want it gone...But that will be down the road...I just hate how long this road is getting seems everytime  I go to an appt they throw another 6 months or so on...And I want to live, I will do what I have to do...but as soon as possible I want my life back!
    

2 comments:

  1. Wow! I hope u can have a hysterectomy asap! Prayers for u always!

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    1. Have an appt in the morning to discuss it...Thank God Magee always finds me a way to be seen immediatly...

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